Workshop on the Burden of Skin Diseases Agenda
September 4-5, 2002 (historical)
Lister Hill Auditorium, Building 38A
National Institutes of Health
Bethesda, Maryland
Wednesday, September 4, 2002
7:00-8:00 A.M Registration
8:00-8:05 Opening Remarks
Dr. Alan N. Moshell, Chief
Skin Diseases Branch, NIAMS
8:05-8:15 Establishing Parameters for the Workshop
Dr. Irwin M. Freedberg, Chair
8:15-8:30 Overview: Scope of Disease Burden and Need for Definition/Taxonomy
Dr. Mary-Margaret Chren
8:30-9:30 Session I: Traditional Measurements of Burden: Including Economic Impact, Morbidity, Mortality, and Disease
Incidence
Dr. James A. Schuttinga
Dr. Martin Brown
Dr. Boris D. Lushniak
Dr. Martin Weinstock
9:30-10:30 Session I: Discussion
10:30-10:45 Break
10:45-12:05 Session II: Personal and Family Factors: Education/Career, Children and Families (Including Family Planning), Interpersonal Relationships
Dr. Philip Fleckman
Ms. Shelley Diamond
Ms. Tara Rolstad
Ms. Sharon Terry
12:05-1:05 P.M. Lunch
1:05-2:05 Session II: Discussion
2:05-3:25 Session III: Quality of Life and Measurement Instruments
Ms. Claire Snyder
Dr. Lynn Drake
Dr. Wilma Fowler Bergfeld
Dr. Mary-Margaret Chren
3:25-3:40 Break
3:40-4:40 Session III: Discussion
4:40-4:50 Chair's Closing/Adjourn for the Day
Thursday, September 5, 2002
8:30-8:35 A.M. Remarks by Dr. Stephen I. Katz
(Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases)
8:35-9:55 Session IV: Societal Impact
Dr. Dean Jamison
Ms. LaDonna Williams
Dr. Vicky Holets Whittemore
Dr. Robert Stern
9:55-10:55 Session IV Discussion
10:55-11:10 Break
11:10-12:40 Session V: Available Data Sets and Data Needs and Data Assessment
Ms. Reva Lawrence
Dr. David J. Margolis
Dr. Steven R. Feldman
Ms. Vicki L. Burt
Dr. Alison Ehrlich
Dr. Robyn Thomas
12:40-1:40 P.M. Lunch
1:40-2:40 Session V: Discussion
2:40 -3:00 Workshop Wrap-up
Dr. Irwin M. Freedberg
3:00 Adjourn
3:00-4:00 Planning Workshop Summary
Discussants
Dr. Rajesh Balkrishnan
Dr. Sarah L. Chamlin
Dr. Suephy C. Chen
Dr. Richard Clark
Dr. Alan B. Fleischer
Dr. Marie-Louise Johnson
Dr. Gerald Lazarus
Dr. Wendy Max
Dr. Peter Muennig
Dr. Stephen Rapp
Dr. Dorothy Rice
Dr. Scott Sicherer